Steps in joining the registry

  • Start by clicking the “Join the registry” icon

  • Create an online account by entering full name, username, password.

  • Read the participant information sheet and click on the “confirm (I have read all the details)”

  • Click on yes for each statement for an informed voluntary consent. (If you wish to participate in the registry. You can withdraw at any time.)

  • Begin by entering the details as required in the survey

  • Choose if you wish to be notified further about the reports of the registry as well as the activities of the consortium

Thank you for choosing to participating in the CHI India registry.

Please contact us at chi@ordindia.in  case of any queries.  ORDI Rare Disease Helpline no : +91 8892 555 000